Right diet may be the best way to beat multiple sclerosis and sizzle too June 17, 2010
Posted by Rebecca Hoover in Diet - the right diet for MS, what you need to eat.Tags: Add new tag, Hope, Jelinek, MS and Diet, MS Diet, Multiple Sclerosis, Multiple Sclerosis Diet, national ms society, Nutrition, Swank MS Diet
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If you have multiple sclerosis (MS) or know someone who does, there are many reasons to be optimistic. First, even members of Congress have had MS. Second, as each year passes, doctors and scientists learn more about what is needed to manage MS instead of having MS manage you. You may not be able to cure MS but most likely you can minimize it. Realistically, however, drugs are unlikely to make you well. To be as well as you can be, research shows an ultra healthy diet is needed.
Quite simply, the research shows that eating some foods is associated with the onset of MS and more MS symptoms and disability and other foods seem to help relieve MS symptoms. This is why a good MS diet is part of a modern science-based approach. And this ultra healthy MS diet will even make you more attractive!
Numerous studies have shown a relationship between diet and MS and point the way to a healthy diet for those with MS. Dr. Roy Swank, for example, a professor and neurologist at a university’s medical school in Oregon, found that eating too much saturated fat helps cause MS and makes MS worse. Other studies have found, MS is more frequent where Vitamin D deficiencies are common, when too much animal fat is consumed and even when too many sweets are eaten. At the same time, one study shows that eating whole grains and fruits and vegetables helps protect against MS.
Most important for those with MS, Dr. Swank studied the impact of diet on MS patients. He found that those who followed a low-fat, ultra healthy diet he planned, often lived normal lives. In fact, he wrote that 95% of patients who started following his diet shortly after diagnosis never became disabled. In contrast, he reported those who did not eat a healthy low-fat diet, often became disabled and died at a relatively young age.
Dr. Swank carefully defined what a low-fat diet is because he was so concerned about the impact of saturated fats on those with MS. His diet prohibits eating of more than 15 grams of saturated fats each day and recommends eating of only 20 to 50 grams of unsaturated fats each day. Of course, Dr. Swank’s diet also prohibits eating of any transfats, monoglycerides and diglycerides because the health problems caused by these are well known.
I believe I have no visible symptoms today because way back in 1992, shortly after I was diagnosed I found information on Swank’s theories about a low-fat, ultra-healthy diet and started following his advice. (I take no drugs.) Best of all, you can try his advice on the Swank MS Diet and for free. You can borrow his classic book from your local library using an interlibrary loan if necessary. Otherwise, you can buy is book at a modest price at Amazon.com. His book is entitled The Multiple Sclerosis Diet Book by Roy Laver Swank. This book is so important for anyone with MS that it should be required reading. If you have MS, this is the first book to read.
If the opportunity for better health is not enough to get you to try Dr. Swank’s diet for a few months, please consider this: his diet will make you look better than you have ever looked. When you start eating the right fats, taking fish or cod liver oil, taking a few low-cost supplements, and eating fruits, vegetables and whole grains, you are going to be surprised at the difference in your appearance in a few months. Dr. Swank’s diet is precise, though, so be prepared to be precise when following it. Cheating is not a good idea.
An excellent web site that includes important information, including dietary recommendations prepared by a doctor, is Overcoming Multiple Sclerosis, prepared by Dr. George Jelinek who is also a professor of medicine. I love this web site and I highly recommend its use. Dr. Jelinek has MS himself and believes most can minimize MS symptoms with the right life style choices.
I also highly recommend Dr. Jelinek’s book on multiple sclerosis. A new version of this book, however, was published in February 2010 but was initially available only in Australia and New Zealand. Now, it is available in in much of the world. (Most book sellers are no longer stocking his previous book on multiple sclerosis which was called Taking Control of Multiple Sclerosis). His new book is called Overcoming Multiple Sclerosis: An Evidence-Based Guide to Recovery and is available on Amazon and other sites. Google books now provides a preview of this important book at: Overcoming Multiple Sclerosis: An Evidence-Based Guide to Recovery.
If you want to read Jelinek’s older book on multiple sclerosis, it is probably best to borrow it from your local library. Also, the Overcoming Multiple Sclerosis web site is so thorough and informative that it includes the basic information you need.
Of the many books I have read on MS, I most highly recommend those by Dr. Swank and Dr. Jelinek. Please note, though, that the recommendations of Dr. Swank and Dr. Jelinek do differ somewhat. I use combination of ideas from both. For years I tended to follow Dr. Swank’s recommendations on diet and Dr. Jelinek’s recommendations on supplements. Now I lean more towards Jelinek’s recommendations and I primarily eat a whole plant food diet with fish such as salmon and sardines. (Please also note that I do not recommend the web site of the Swank Foundation that was founded by Dr. Swank. Dr. Swank is now deceased and, unfortunately, the web site of the Swank Foundation now includes recommendations that are not well-grounded in science.)
In summary, I’m not the only one who thinks the odds you can beat MS are good if you eat a healthy diet and follow the other advice included here. A couple of professors agree with much of what is included here. So, best wishes in changing your life style. Eat healthy to live healthy and look drop dead gorgeous!
I will include more information on how you can maximize your sizzle in upcoming blogs.
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult with your doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2010 Rebecca Hoover
Tags: Avonex, Betaseron, Copaxone, Diet – the right diet for MS, Fatigue, Fish Oil, Food, MS, Multiple Sclerosis, Nutrition, Prevent, Rebif, Relapses, Sizzle, Tysabri
While sun exposure and vitamin D3 help with multiple sclerosis, tanning booths may create problems February 15, 2012
Posted by Rebecca Hoover in Supplements - what you need to minimize MS symptoms, Uncategorized.Tags: Multiple Sclerosis, Natural, Sunlight
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Ouch! While sunshine seems to help prevent MS and prevent relapses, tanning booths are risky and may increase your chances of getting cancer.
Many researchers have found that exposure to sunshine seems to help prevent multiple sclerosis (MS) and sunlight exposure may even help prevent relapses. The same is true for vitamin D3.
Unfortunately, tanning booths may not work so well. First, there is no evidence that the greater proportion shorter ultraviolet light waves in tanning booths has the same beneficial effects as natural sunlight. Also, scientists believe that the higher proportion of shorter ultraviolet light waves may be increasing cancer risks. You can read more about this in a report entitled A photobiological evaluation of tanning booths.
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Natural sunlight has many benefits when not overdone including even lifting your mood and contributing to sound sleep at night. The same cannot be said for tanning booths which may help cause more cancer. It is wise to stick with natural sunlight exposure and vitamin D3.
Viva la healthy living!
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult your with doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2012 Rebecca Hoover
Cigarette smoking and multiple sclerosis — scary stuff February 12, 2012
Posted by Rebecca Hoover in Smoking - why it is important to quit to avoid MS and disability.Tags: Cigarettes, MS, Multiple Sclerosis, Smoking
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Freedom from smoking is essential. Smoking seems to help cause MS and makes MS symptoms worse. Dumping the stinky sticks makes you healthy and glamorous.
Unfortunately, cigarette smoking seems to be part of the multiple sclerosis (MS) picture for some patients. Studies have shown that cigarette smoking increases the chances of getting MS and seems to make MS worse. If you smoke, it is important to quit.
The amount by which cigarette smoking increases the likelihood of getting multiple sclerosis is not small. One study showed that smoking increases by the chances of getting multiple sclerosis by 27 percent. A related issue is found in another study showing that it is more difficult for doctors to diagnose MS in smokers so a delayed diagnosis leads to unnecessary delays in treatment. Most frightening, even children who are exposed to second hand smoke are more likely to develop MS.
For those who already have MS, smoking is also scary. The studies show that smoking increases the amount of disability in MS and seems to encourage the onset of progressive multiple sclerosis from which there is no relapses.
The increases in disability for smokers with MS vary with the amount smoked. Those who smoke less than one pack a day become more disabled than nonsmokers and heavy smokers of two or more packs per day become the most disabled of all. An earlier study showed that, in addition to the general increase in disability among smokers with MS, smoking even causes a temporary decrease in motor functions after a cigarette is smoked.
When it comes to MS, smoking is scary. If you do smoke, this is the time to promise yourself you will free yourself from this expensive and unhealthy habit. You owe it to yourself and your family, especially the children in your family, to protect yourself and others from harmful effects of smoking. Also, please remember that if you do not smoke, it is important to avoid second hand smoke.
For an excellent study summarizing some of the research on smoking and MS, see “Smoking: effects on multiple sclerosis susceptibility and disease progression” by Dean M. Wingerchuk. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3251901/?tool=pubmed
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult with your doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2009 Rebecca Hoover
This holiday season, before you cheat on an MS ultra healthy living program, think about these photos November 23, 2011
Posted by Rebecca Hoover in Diet - the right diet for MS, what you need to eat, Uncategorized.Tags: George Jelinek, MS Diet, Multiple Sclerosis, Swank Diet, Swank MS Diet
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Many look fabulous with MS thanks to an ultra healthy lifestyle. What does MS look like? It often looks like David Osmond who has MS. Those who follow an ultra healthy life style say their friends always comment on them finding the fountain of youth. Fun!

It's hard to find a better looking role model for a life of healthy living with MS than our own Professor George Jelinek, M.D. In the USA, we would call Jelinek a beefcake! Woohoo! Take a look at this picture of him at age 57 with his wife at the beach in France! More fun! What do you think? Do you have photos of MS role models we should post? Ah, inspiration is a wonderful thing and aids the goal setting process. The important message is that living a long and full life with MS, with little or no disability, is entirely possible.
On The Intelligent Person’s Guide to Beating Multiple Sclerosis, we often remind ourselves and others that following an ultra healthy lifestyle that helps beat MS is not a sacrifice. In fact, when we see the benefits, we start leaving information on ultra healthy living around for others — whether they have MS or not. Besides, healthy food tastes good and feels good!
Alas, given the world-wide tradition of over-indulgence at holiday time, it is time once again to remind ourselves of the benefits of healthy living. Temptations abound. We need to remind ourselves of the consequences of cheating while remembering the amazing benefits of an ultra healthy lifestyle. A look at these photos can help us remind ourselves and nudge others in the right direction too. Remember always, we love feeling and looking healthy and “drop dead gorgeous from eating right”.
Happy holidays!
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult your with doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2011 Rebecca Hoover
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Worried about your memory and thinking? Exercise for those with MS (and others) helps beat memory loss and cognitive problems November 10, 2011
Posted by Rebecca Hoover in Uncategorized.2 comments

You can help yourself be smart by eating right, exercising and kicking the bad habits. Of course, these same steps will keep you looking like a babe! Whoa!
Those with multiple sclerosis (MS) are not the only ones to experience memory and cognitive problems. So, not surprisingly, the same steps that may help those with MS beat memory and thinking problems help everyone.These steps involve getting exercise, eating right and avoiding soy.
Exercise is one key because it helps both increase both memory and brain power. In one study, with a report entitled Physical activity associated with increased resting-state functional connectivity in multiple sclerosis, researchers found that exercise actually improves connectivity in the brains of those with MS and their memory. In another study, scientists found that physical activity improves brain processing speed: Physical activity and cognitive function in multiple sclerosis. Of course these are just two studies but many other studies have showed the same results.
It is not just exercise that is needed for brain power — a healthy diet is also needed. When diet does not provide essential nutrients, all kinds of neurological problems can develop including diminished intellectual capacity. For a sense of the ability of poor nutrition to severely hamper intellectual functions, see Effects of poverty on cognitive function: a hidden neurologic epidemic. To preserve robust thinking abilities, an ultra healthy diet such as the Swank MS Diet or the diet recommended by Professor George Jelinek, M.D. can help everyone not just those with MS.
Finally, avoiding some soy foods may help prevent cognitive problems. While fermented soy found in tempeh and miso has not been found to be problematic, other soy foods are associated with early loss of memory as well as other cognitive issues. Avoiding tofu may be a good idea (see High tofu intake is associated with worse memory in elderly Indonesian men and women). Other unfermented soy foods seem to have similar results. One study, for example, showed use of some soy products by older women reduced both memory and processing abilities in women (The effects of soy milk and isoflavone supplements on cognitive performance in healthy, postmenopausal women).
All of this points out the importance of following an ultra healthy living program of the type recommended by The Intelligent Person’s Guide to Beating Multiple Sclerosis. By eating right, exercising, avoiding bad habits such as smoking, etc. one maximizes each of the following: mind, body, good looks and fun! So live healthy and have fun. Remember, you only get to live once so it makes sense to take full advantage of the experience and enjoy!
Remember too that MS does not necessarily cause memory and cognitive problems. I took a class a couple of years ago and was, as usual, at the top of my class. Likewise, many with MS have gone to law school, serve in public office, work as doctors and professors, etc. Some of what happens depends on making smart choices. It is important to follow an ultra healthy living program — no ifs, ands, or buts about it.
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult your with doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2011 Rebecca Hoover
To beat MS, avoid viral and bacterial infections April 25, 2011
Posted by Rebecca Hoover in Infections - why and how to avoid them.Tags: Infections, Multiple Sclerosis
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Doing little things to avoid infections is important in beating MS. This includes excellent teeth brushing and flossing. I recommend a power toothbrush.
(Note: As I often do more recently, I have published a copy of this post on the better than great Overcoming Multiple Sclerosis web site. I continue to encourage everyone to to use that site for ideas on healthy living and for up-to-minute information on research.)
Most experts agree that beating multiple sclerosis (MS) requires avoiding inflammation and infections. Why is that? Because MS involves mis-educated t-cells that attack the myelin rather than germs. That’s why we eat an anti-inflammatory diet and avoid infections.
The research shows that both viral and bacterial infections can cause a worsening of MS symptoms or relapses. One study, for example, suggests that about 50 percent of relapses may be the result of infections. Other studies have shown that MS relapses are more likely to occur with almost any type of infection. For example, one study found relapses were more likely to occur in the presence of upper respiratory infections. Both viral and bacterial infections are culprits — making MS worse.
The culpability of infections makes sense. Since infections trigger production of t-cells, there are more mis-educated t-cells around to attack the myelin when infections occur.
Avoiding infections is important, and another post in my blog includes some suggestions for avoiding infections. In addition, it is wise to pay attention to oral care because poor oral care can result in gum infections. At the suggestion of the staff at the University of Minnesota’s Dental School, I personally added use of a power toothbrush to my own brushing routines a few years ago. I am glad I did. My need for visits for dental cleaning dropped by more than 50 percent and some inflammation in the gums disappeared. In addition, my teeth now look and feel like a million bucks — sizzling, as we say, and drop dead gorgeous.
As so often is the case, what is good for MS is good on the ‘drop dead gorgeous’ front. Viva la healthy living.
P.S. Here’s a great tutorial on Proper Brushing. (Many get a bit lax about brushing correctly so it helps to review information on brushing technique every now and then.) Let’s all help everyone we know who has MS get a power toothbrush. (I use a Sonicare and recommend it.) If we know someone who has MS and who cannot afford a power toothbrush, let’s all give a power toothbrush as a gift and share the gift of health. Each one helping one would go a long, long way!
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult your with doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2011 Rebecca Hoover
Crimini mushrooms may help beat multiple sclerosis and CCSVI October 26, 2010
Posted by Rebecca Hoover in Uncategorized.8 comments

Can crimini mushrooms help you beat MS and CCSVI while making you look this good? The science looks promising. At the very least, when the mushrooms help keep your blood vessels free of plaque, they will help give you a healthy glow.
Crimini mushrooms do look promising for both multiple sclerosis (MS) and any chronic cerebrospinal venous insufficiency (CCSVI). Research shows the mushrooms have a couple of effects that are likely to produce some good results for those with MS. Even so, a smart approach to using the mushrooms involves combining the mushrooms with other health enhancing vegetables as discussed below. A few of us tried out eating more mushrooms and the vegetables and we have some results to report.
The first effect that makes crimini mushrooms of special interest to those with MS is identified in a study entitled Anti-inflammatory and Immunomodulatory Properties of 2-Amino-3Hphenoxazin-
3-one and published in 2008. In that study, researchers from Japan explained that the crimini mushroom, which has a scientific name of agaricus bisporus, contains a compound that “can down-regulate the inflammatory cascade that can lead to tissue and bone destruction at sites of inflammation”. The scientists suggest that this compound may prove useful in the treatment of autoimmune diseases such as multiple sclerosis. The article is difficult reading but the above link takes you to the full article.
The second fascinating effect of crimini mushrooms involves their ability to protect against cardiovascular disease by helping prevent adhesion and plaque buildup in the blood vessels. This ability was discussed in an article published in 2010 and entitled Both common and specialty mushrooms inhibit adhesion molecule expression and in vitro binding of monocytes to human aortic endothelial cells in a pro-inflammatory environment. This report is a little easier to read and the link again takes you to a full text article. In any event, it is apparent from the article that if you are worried about CCSVI, mushrooms are certain to be of interest to you.
This second article also contains some other interesting facts for those thinking about CCSVI and MS. The article points out that phytonutrients contained in leafy greens such as kale, spinach and leaf lettuce; in yellow vegetables such as carrots and yams; and in red vegetables such as tomatoes also have potent abilities to prevent plaque buildup and adhesion in the blood vessels.
What does all of this suggest to those with MS? It suggests eat, eat, eat mushrooms and vegetables. If you are worried about CCSVI, vegetables and some mushrooms might be your best friends. It should be noted that vegetables, especially leafy greens, should be eaten at least twice a day. Some of the phytochemicals in leafy greens and other vegetables that prevent adhesion are available in the blood stream for only a few hours after they are eaten. Then, they must be replenished. The availability of phytonutrients from vegetables in the blood can be increased somewhat with extra virgin olive oil. For this reason, it is a good idea to eat a small amount of olive oil when eating vegetables.
This new information on mushrooms and vegetables makes sense in light of previous epidemiological studies that showed eating vegetables has a protective effect again MS.
Based on the information, a few of us conducted our own little rather unscientific pilot study — we called it theory building. We dutifully ate leafy greens two times a day and ate generous quantities of mushrooms for one week. We also made a point of eating yellow and red vegetables each day. (I steamed my mushrooms for a few minutes.) The first day, I ate about 1/2 pound of mushrooms and thereafter I ate about 1/4 pound each day. I used both the standard crimini mushrooms and portabella mushrooms which are more mature crimini mushrooms.
Those of us who tried this little experiment thought we had two outcomes: (1) we felt more alert and (2) we thought we slept more soundly at night. I personally felt I also had a small increase in fine motor skills.
All in all, vegetables are an exciting and overlooked way to increase our wellness. Please try out eating more mushrooms and vegetables and let us know if they give you a boost too.
It is interesting that the Japanese, who have very little MS, eat about 19 pounds of mushrooms each year. In contrast, most in the west, where MS is common, eat only one or two pounds of mushrooms each year.
It has long been known that the vascular system does play some role in MS. If you are worried about MS or about CCSVI, based on more recent research, it makes sense to eat more of the protective vegetables discussed and mushrooms. When you try eating leafy greens two times a day and add a some mushrooms, please do let us know the result. Perhaps we can push the MS societies for some real trials that nail down all of the facts on mushrooms and MS.
Viva la healthy living! Remember: nothing will make you look drop dead gorgeous faster than following an MS diet and an ultra healthy lifestyle.
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult your with doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2010 Rebecca Hoover
A scientific multiple sclerosis (MS) diet keeps you looking young too October 23, 2010
Posted by Rebecca Hoover in Diet - the right diet for MS, what you need to eat.Tags: George Jelinek, MS Diet, Multiple Sclerosis, Swank Diet, Swank MS Diet
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Professor George Jelinek, M.D. and Professor Roy Swank, M.D. both suggest diets that will help you beat MS and wrinkles too. What could be better than that? Professor Jelinek has MS and is in his mid-50s in this picture but look much younger because he eats right. The same diet that is healthy for those with MS keeps you looking young.
If Professor George Jelinek, M.D., who has multiple sclerosis (MS) and who religiously follows an MS diet looks good in his mid-50′s, it is no accident. His science-based MS diet both helps beat MS and helps prevents aging and even wrinkles. It is no wonder Professor Jelinek, who is in his mid-50′s in the picture in this article, looks much younger than he is.
The extent to which an MS diet contributes to your good looks is apparent from a couple of studies. One study entitled Skin wrinkling: can food make a difference?, found that a diet rich in vegetables, olive oil, fish and legumes helps prevent wrinkling. This type of diet is the type of diet Professor Jelinek recommends for those with MS. In contrast, the study found that a high intake of meat, dairy and butter appears to contribute to wrinkling. The study also helpfully points out that prunes, apples and tea contribute 34% to the helpful variance in a good diet in preventing aging. (You can follow the link above to see the abstract for the study.)
Another study from Japan found something similar. Entitled Association of dietary fat, vegetables and antioxidant micronutrients with aging in Japanese women, this second study found yellow and green vegetables were especially helpful in preventing aging. (Again, you can follow the link above to see the abstract for the study.)
It seems we have a choice: We can have a healthy MS diet rich in legumes, fruit and vegetables, etc., and low in saturated fats and be youthful, or we can eat a junk food diet full of saturated fats and processed foods and be prematurely aged. It seems it is that simple.
When you are thinking about abandoning an MS diet because you miss junk food and saturated fats, it helps to remember the whole picture. Eating right is not only good for your health — it keeps you looking good too. Also, if you need to convince the kids in your family to eat right, you can point out that eating junk food will give you wrinkles and you just might end up looking like the Wicked Witch of the West.
Personally, I vote for feeling good, health and looking good. I hope you do too.
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult your with doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2010 Rebecca Hoover
Beating MS may sometimes require being smarter than your doctor October 5, 2010
Posted by Rebecca Hoover in Uncategorized.add a comment

Every neurologist I have seen likes a hammer and tuning fork. Personally, I prefer some sensible laboratory tests. I suggest these for the savvy person with MS.
(This post was written for use on the wonderful website Overcoming Multiple Sclerosis of medical professor George Jelinek, M.D. I encourage you to visit that website too.)
As someone with multiple sclerosis (MS), I have noticed that some neurologists do not bother keeping up with research or can get lazy about working to enhance wellness for those with MS. For this reason, I think it is usually wise to consider being a pro-active patient and sometimes a pest. This is called “being your own best advocate”.
As part of being your own best advocate, planning a periodic checkup checklist is a good idea because it can help you increase your wellness. Below are the laboratory tests that I suggest when appropriate. If you recommend others, please leave a comment. We can all learn from each other!!
Mercury — If you have been around broken thermostats or thermometers containing mercury or if you eat a lot of fish, it is wise to request testing of your mercury levels at a periodic checkup. Mercury can cause neurological symptoms similar to those caused by MS. For more information on the mercury issue, the Food and Drug Administration in the USA has an excellent table showing Mercury Levels in Commercial Fish and Shellfish. I usually eat only salmon and sardines because they are relatively low in mercury.
Lead — When I was first diagnosed my neurologist ordered a test to determine the level of lead in my system. Those who are exposed to higher levels of lead from paints, etc., are wise to have this test done at least once too.
Arsenic — If you work in one of the construction trades around materials that are treated with arsenic, it is smart to include an arsenic test in an annual checkup. Arsenic can cause severe neurological problems such as memory problems and anyone working in the trades using arsenic coated lumber, for example, needs periodic tests for arsenic poisoning. (Coatings for lumber used in decks often contain arsenic in some parts of the world.) If you have too much arsenic in your body, you will want to address this problem promptly.
Vitamin B12 — Many, for some poorly understood reason, do not absorb vitamin B12 well even if there are adequate supplies of vitamin B12 in the diet. Since a vitamin B12 deficiency can cause neurological problems similar to those caused by MS, it is important to have your level tested at least a few times to ensure that your level is always at the higher end of the normal range. More than one case of vitamin B12 deficiency has been misdiagnosed as MS. Also, if your B12 level is low, you will feel better if you correct this deficiency.
Vitamin B6 — Vitamin B6 does not get discussed much but low levels of vitamin B6 are quite common. I discovered a few years ago my own level was running low after I experienced what seemed to be MS related problems with my feet and some nasty arthritis pain. Fortunately, I happened to see an article about vitamin B6 deficiencies so I requested a test and, sure enough, my level was low.
Like the other B vitamin deficiencies, a vitamin B6 deficiency can cause problems similar to those found in MS. Specifically, vitamin B6 deficiencies can cause neuropathy in the extremities, often the feet. Also, low levels of vitamin B6 can cause worsening of arthritis. For these reasons, an annual vitamin B6 test for at least a few times is smart. This is more important as we age because vitamins do not absorb as well in older individuals. If you do find out that you have a vitamin B6 deficiency, do be careful about not taking too much vitamin B6 as I did. (I now know the effects of too much B6, pins and needles, etc., in the extremities. Fortunately, I have figured out the amount of B6 I must take to keep my level at the the higher end of the normal range — and my arthritis pain has largely disappeared.)
Vitamin D — Of course we all know about the importance of vitamin D to those with MS so not much needs to be said. If you know how to keep your vitamin D level at the high end of the normal range, a vitamin D test once a year is still a good idea. If you are having problems keeping your vitamin D level at the high end of the normal range, vitamin D tests once every three months until you have mastered the art of achieving a healthy vitamin D level are wise.
Lyme’s Disease — More than one case of MS has turned out to be Lyme’s Disease, a treatable disease. I suggest that anyone who has possibly been exposed to the virus causing this disease have the test to rule out Lyme’s Disease.
That’s it. Those are the tests I recommend. I hope other can share any recommendations they have too. It is interesting that our doctors often focus on disease while we focus on increasing wellness. Personally, I think our approach works better and the research increasingly suggests our wellness oriented approach is smart. We are so far ahead of the doctors in many ways!
It is interesting that some doctors will be reluctant to order needed laboratory tests. I have encountered this problem myself and offer two suggestions for dealing with it. First, if a doctor is just too difficult, a new doctor is a good idea. In other cases, the doctor needs some education because not all doctors are MS specialists and many just are not up-to-date in the treatment of MS. I know one doctor who was a bit reluctant to order needed vitamin D tests, for example, but when she learned about the importance of vitamin D to those with MS, she started ordering the tests regularly. Sometimes we have to educate the doctors as part of being our own best advocates.
Viva la healthy living! Remember: nothing will make you look drop dead gorgeous faster than following an MS diet and an ultra healthy lifestyle.
Please let me know if you find my blog helpful. Please add a comment. What did you like? What would you like added? Thanks! Together we can change the way the world views MS. Please also join the Intelligent Guide to MS page on Facebook. I will use that page to make timely posts on new research and other issues likely to be of interest to others.
Please remember to consult your with doctors about how to stay as healthy as possible. Nothing here should be interpreted as medical advice. Instead, please use the information you find here in your discussions with your doctor.
Copyright 2010 Rebecca Hoover






