Comments on: Contact me

By: Julie Calder

Julie Calder — Tue, 24 Nov 2009 15:47:06 +0000

Let’s hear it for Vitamin B12!!
I had a very busy week last week, and I ran out of my usual Vitamin-B12 tablets (1000 micrograms per day). I thought I’d be OK, but after 4-5 days of managing without, I started to get very tired, and my left leg started hurting. I think it was foot drop because I kept tripping over things. Normally this has happened with my right leg, but diet and exercise, as suggested by this site (and by George Jelinek) had helped to clear this up. I got very worried and asked my husband to go and fetch some Vitamin B-12.Once I started taking it again, after a few days the symptoms went away. There has been a lot in the news recently about Vitamin D and I know how important it is to take this. However, this is just a little reminder that we need to take Vitamin B-12 too!

By: rhonda

rhonda — Sun, 08 Nov 2009 23:32:06 +0000

this site is such a god send for me thankyou so much xx no one understands that i get worse if im to warm n stress and walking n lights n tomuch going on visualy and OMG i could go on n on

By: Rebecca Hoover

Rebecca Hoover — Mon, 02 Mar 2009 13:43:34 +0000

Thanks for sharing information on the extent to which diet and exercise seem to have helped you. And, yes, I have heard of the myelin regrowing — this is quite common actually. Many individuals have lesions that heal and disappear. In some cases, all of the lesions will heal but, usually, this is not the case. Usually, the number of lesions just decreases.

I think that why this healing of lesions happens is what we want to discover. I personally think that the healthy diet, exercise and other steps included on my list of things to do work together to help decrease lesion activity–and studies tend to support this notion. Definitive studies are still needed. Also, studies show that some of the drugs for MS do help decrease the number of lesions or lesion volume for some patients.

In any event, congratulations to you for being smart and making life style improvements! You’re a real pioneer–leading the way for others.

By: Shane O'Brien

Shane O'Brien — Mon, 02 Mar 2009 10:30:41 +0000

I had my first attack in 1977 but was not diagnosed. I was diagnosed after a severe attack in1982 which left me paralised from the waist down and suffering all of the most typical symptoms I.E. severe incontinence urinary and fecally, extreme anxiety, severe depression and fatigue, also a constant burning buzzing hard to discribe pain in my sacrum area. after fighting it mentally at the same time physically I.E. A very healthy diet and regular exercise, focusing on the lower limbs or portion but keeping my entire body strong. It has taken many years of determination but now I can run and am pretty fit, although still suffer all of the other symptoms but they too have improved. Of course over many years I have also learned to manage the symptoms better. Recently I had another MRI and discovered that the mylon sheath had regrown considerably in places. I also read a brochure which discribes in some sufferers the relapsing symptoms are actually at the same time regrowing the mylon sheath. Do you know of any one else this has happened to ?

By: Rebecca Hoover

Rebecca Hoover — Wed, 14 Jan 2009 01:07:51 +0000

Hi Adriana,

Thanks for the neat comment! It always feels great to know my blog is helping others. We all should have a lot of hope (if we behave ourselves by eating right, etc.)!

Best wishes. Stay in touch. I’ll be anxious to find out how you are doing.

And, isn’t it great how the fish oil and great diet makes the skin silky smooth and makes one even look younger?! Woooooohooooooooooooo!!!

Rebecca

By: Adriana

Adriana — Tue, 13 Jan 2009 22:29:07 +0000

I just read several past blogs and am so thankful for your hopeful outlook and good advice. I was dignosed with a clinically isolated syndrome (one episode of MS) a few months ago and am trying to break decades of poor diet habits to follow the Swank Diet. One thing which makes it easier is that I absolutely feel younger and better now that I’m eating right. Thanks so much for sharing your experiences!

By: Cathie

Cathie — Sat, 20 Dec 2008 20:27:03 +0000

I love your blog. I have bookmarked it and put a link to it on my own website. My site is about my weight loss, but, it is also about my MS and the changes I have made in my life because of it.
http://dietsdonotwork.wordpress.com/

I was diagnosed with MS in 1999 and my GP did a blood test, just a couple of weeks ago to check my Vit D levels and they are very low, despite the fact I live in Australia and I am outdoors at least 8 hours a week (I deliver junk mail, so I do heaps of walking in the sunshine)…..

I am now on Vit D3 tabs and I have recently become a vegetarian too…….

Again, thanks for your wonderful website. I am loving it.

Kind regards, Cathie